Urgent Action Needed: How Congress Can Safeguard Your Reproductive Health Data Today

State and federal regulators are increasingly worried about the negative effects of the internet and technology on users. Lawmakers are considering new proposals to protect vulnerable individuals, but these often overlook potential unintended consequences. This is why the Electronic Frontier Foundation (EFF) supports Rep. Sara Jacobs’ “My Body, My Data” Act. This bill aims to safeguard the privacy of those seeking reproductive health care while ensuring vital constitutional protections remain intact.

Healthcare privacy is crucial. The “My Body, My Data” Act requires businesses and nonprofits to handle reproductive health information responsibly. It limits how they can collect or share personal data that isn’t necessary for the services requested.

The bill is particularly protective of individuals using fertility or period-tracking apps. It restricts companies from processing information related to pregnancy, menstruation, and contraception unless absolutely necessary. This measure aims to keep sensitive data safe for those seeking reproductive health resources.

A diverse coalition supports this bill, including Planned Parenthood, the National Women’s Law Center, and the Guttmacher Institute. Together, they emphasize the importance of protecting reproductive health information.

In addition to privacy restrictions, the bill gives individuals the right to access and delete their reproductive health information. Companies will need to clearly state their privacy policies, making it easier for users to understand how their data is handled. The bill also allows the Federal Trade Commission (FTC) to hold companies accountable if they violate these privacy promises.

One unique aspect is the private right of action. This means individuals can sue companies for privacy violations, putting power back in the hands of the people. This not only ensures companies take compliance seriously but also encourages a more ethical approach to handling sensitive information.

While the bill lays down essential privacy protections, it also enables states to implement their own laws for even stronger safeguards. This flexibility can lead to better protections for those seeking reproductive health care across the nation.

Despite being a new proposal, the bill reflects ongoing conversations around data privacy, especially in light of recent statistics. A Pew Research study found that 77% of Americans are concerned about how their personal data is used by companies and governments. This growing anxiety highlights the need for robust data protection measures, particularly for sensitive areas like reproductive health.

Rep. Jacobs, along with Senators Mazie Hirono and Ron Wyden, is championing this crucial legislation. Their efforts spotlight the undeniable link between data privacy and reproductive justice, marking a significant step toward a more secure future for individuals seeking health care.



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