Eve from Western Australia believed her two-year-old son, Charlie, was just a bit clumsy. He was his usual happy self, but she started to notice something wasn’t right. Charlie began saying “ouchy” while holding his head, and he wasn’t just clumsy—he was vomiting frequently and seemed excessively tired.
As a nurse, Eve’s instincts kicked in. She worried that something might be wrong with his brain. Yet, when she visited doctors, her concerns were often brushed off. “They told me he was fine,” Eve recalled. But she knew better. Finally, she and her husband decided to take Charlie to Perth’s Children’s Hospital. After just half an hour, a neurosurgeon confirmed her worst fears: Charlie had a tumor in his brain.
This devastating news felt like a nightmare. “I went to the bathroom to be sick,” Eve shared. Just days later, Charlie underwent surgery to remove the tumor, which was about the size of a small apple. Thankfully, surgeons managed to remove 93% of it, but a piece was left behind to avoid damaging critical brain areas.
A few weeks later, testing revealed that Charlie had Group 4 medulloblastoma, a type of aggressive brain cancer more common in children. This classification indicates a severe form that can be particularly tough to treat. “I had this deep feeling of dread,” Eve remembered, realizing how serious Charlie’s condition was.
The months that followed were grueling. Watching her once vibrant child go through surgery and relentless chemotherapy was heart-wrenching. “We felt selfish at times,” Eve said, struggling with their child’s pain. Charlie battled major side effects, including hearing loss, speech difficulties, and fatigue.
Statistics show that approximately 700 children are diagnosed with cancer each year in Australia, which translates to roughly 86 kids each month. The family took this statistic to heart and began raising funds for the Children’s Cancer Institute, advocating for more research into childhood cancers.
Now five, Charlie is learning to cope with his disabilities. At school, he appears similar to other kids but needs extra help. “He’s more clumsy and can’t move as fast as his peers,” Eve explained. Yet, they focus on his achievements, reminding themselves that every moment is precious.
The toll on the family is heavy. While Charlie is unaware of the full extent of his situation, Eve and her husband are navigating both the good and tough days with resilience. They’ve shifted their mindset to gratitude, embracing every smile and milestone.
“Living scan to scan is daunting,” Eve admitted, as Charlie undergoes frequent MRIs to monitor his condition. With the next five years critical to his future, they at least find comfort in being present for one another.
Sharing their journey, Eve wants to highlight the necessity of funding for childhood cancer research. “The treatments available are often not designed for children,” she said, stressing the need for better options.
To other parents facing similar challenges, she offers a message of support: “Don’t hesitate to ask for help. There’s a strong community ready to support you in this fight.”
By shining a light on Charlie’s story, Eve hopes to raise awareness and inspire others to join the fight against childhood cancer. Every day is a blessing, and she encourages everyone to cherish those moments.
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