In 2020, CNN grouped Indigenous peoples under “SOMETHING ELSE” during presidential exit polls. This kind of data collection hides important information about Native peoples and happens in many areas, including public health. Here, we’ll discuss three specific examples of how Indigenous communities are affected by this issue and suggest some ways to improve the situation.
First, the counting of public health workers often leaves out Tribal health organizations. For instance, a major workforce census conducted in 2024 didn’t include Tribal workers, focusing only on federal, state, and local agencies. This exclusion isn’t new; for over a century, tribal entities have often been omitted from these counts. The recent Public Health in Indian Country Capacity Scan surveyed 282 Tribal health organizations (THOs), but only 133 responded. They revealed that THOs employ over 5,000 staff members but need many more to meet their health needs. Without proper data, we can’t see the full scope of staffing gaps or funding issues in these organizations.
According to PHICCS II, these THOs reported needing a 21.5% increase in funded positions to function at full capacity. This underfunding limits their ability to provide vital health services.
Second, the lack of data about Indigenous communities has created a situation that some call “data genocide.” Historically, Native peoples were the first scientists on this land, but their knowledge has often been ignored. A report by the Urban Indian Health Institute found that states performed poorly in collecting accurate data about COVID-19 impacts on American Indian and Alaska Native peoples. Most states received grades of D or worse, making it difficult for health authorities to respond effectively to the pandemic. The result? High infection rates in Tribal communities, such as those seen in Navajo Nation.
Lastly, the failure to collect and analyze data on issues affecting Native peoples contributes to their marginalization. Violence against Indigenous groups is a public health concern. The ongoing crisis of missing and murdered Indigenous people highlights the consequences of ignoring this data. Denial plays a role in genocide, as it keeps the problem hidden from view and hampers efforts to protect these vulnerable populations.
So, what can we do about these challenges? First, we must prioritize funding for Tribal health data collection. The federal government has trust obligations to Native communities that should include support for accurate data gathering. Additionally, it’s not enough to simply add a chair for Indigenous voices at decision-making tables. We need to create new platforms designed specifically for these communities, ensuring they lead these discussions from the start.
Collaboration with Tribal health organizations and establishing Tribal Epidemiology Centers can also improve the situation. For instance, initiatives like Anishinaabe Giigewin Miikana emphasize community participation in research, requiring Tribal approval before publishing findings.
These suggestions are just the beginning. They offer a starting point for public health systems to better support Indigenous health needs. By recognizing and addressing these issues, we can work toward a healthier future for all communities.
